FOR THE COMMUNITY

CIDP Beacons 2025 Spreads Hope and Light

The second annual CIDP Beacons event inspires and educates the community with relatable stories, exciting news, and a dazzling finale

Celebrating CIDP Awareness Month

Following the success of last year’s inaugural event, the CIDP community came together again to recognize CIDP Awareness Month, learn from fellow community members, and empower one another.

The event is co-hosted by CIDP community advocates—Amanda, who lives with CIDP, and Jai, a supportive partner to his wife who lives with CIDP.

Watch the best of CIDP Beacons 2025

Experience the full CIDP Beacons 2025 video, or click one of the segments below to jump right to it.

Explore beyond the video

Photo of Crystal, smiling in a patterned, short-sleeved blouse.
Photo of Crystal, smiling in a patterned, short-sleeved blouse.

Researching CIDP Treatment Options: Q&A With a Community Member

Crystal, who’s lived with CIDP for over 10 years, discusses how she recently explored various CIDP treatment options to address her needs. She speaks about the importance of advocating for herself, communicating effectively with her healthcare team, and other helpful topics.

There are tools, like this discussion guide, that may help you have more productive conversations with your healthcare providers. Click below to learn about common treatments for CIDP to be more informed when discussing your options with your doctor.

Photo of Mike, smiling in a kitchen and wearing a dark apron.
Photo of Mike, smiling in a kitchen and wearing a dark apron.

Healthy Cooking With Chef Mike

Before his CIDP diagnosis, Mike was a professional chef for years. He shares his thoughts about working in the kitchen, including practical tips and adaptive devices you can use to make food preparation more manageable when living with CIDP.

Click below to learn how CIDP led Mike to reimagine his career—from cooking in a fast-paced kitchen to helping people improve their health through nutrition.

“Upright Citizens Brigade” against a background of people standing on a stage, clapping.
“Upright Citizens Brigade” against a background of people standing on a stage, clapping.

CIDP Unscripted: Navigating Life Through the Power of Improv

CIDP Unscripted is an upcoming program that uses improv to help those living with CIDP learn creative strategies for approaching common situations. Johnny Meeks, a member of the improv troupe, Upright Citizens Brigade, explains how this educational video series is specifically designed to show how the art of improvisation can be applied to everyday living with CIDP. There’s more to come on this exciting program later in the year!

Image of artist drawing so that the lines appear to glow like light.
Image of artist drawing so that the lines appear to glow like light.

Lighting the Way: CIDP Beacons 2025 Finale

The spectacular finale honors members of the community from across the country by unveiling their light portraits, created by world-renowned light artist, Hannu Huhtamo. The light in these portraits symbolizes awareness, hope, and the enduring strength and unity of the CIDP community.

And a special thanks to the GBS | CIDP Foundation International for their support of CIDP Awareness Month and their ongoing commitment to individuals and families affected by CIDP.

Click below to enjoy all the highlights of CIDP Beacons 2025!


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