REAL PEOPLE, REAL STORIES

Mike Takes a New Course in Life After His CIDP Diagnosis

Mike, who lives with CIDP.
Mike, who lives with CIDP.

As Mike changes career paths—from a fast-paced bistro chef to an enthusiastic nutrition student—he continues to savor his love for food after his CIDP (chronic inflammatory demyelinating polyneuropathy) diagnosis. Through his CIDP journey, Mike demonstrates how embracing change can introduce you to unexpected possibilities.

Finding a calling in life is a gift, and for Mike, that was working as a chef in an energetic, fast-paced restaurant environment. But what happens when life forces you to redefine your passion? Mike faced this question after his CIDP diagnosis, as his symptoms made it difficult to keep up in the kitchen.

Though he had to hang up his chef hat, Mike didn’t lose sight of what fulfilled him: the world of food. He found a way to make the best of his circumstances by redirecting his culinary passion toward studying nutrition to promote health and well-being. “I had to adjust to a new normal,” he reflected. “Being a chef is a physically demanding profession, so I wanted to work with food in a less physically demanding way. That’s why I chose nutrition.”

Watch how Mike’s CIDP journey led him from the kitchen to the classroom

Being a chef is a physically demanding profession, so I wanted to still work with food in a less physically demanding way. That’s why I chose nutrition.

-Mike, living with CIDP

Behind the apron

Before his CIDP diagnosis, Mike spent 16 years as a professional chef at a family-owned bistro outside of Chicago that offered savory shareables, delicious wine pairings, and more. His favorite part of being a chef was the constant activity. “I loved the action of the kitchen,” he shared. “During a dinner rush, everything was pure chaos, but it was controlled chaos.”

Kitchen utensils.

More fun facts about Mike’s passion for food:

What inspired him to pursue culinary school: A love for cooking for family and friends

His favorite dish to cook: Eggs benedict

What he loved most about being a chef: The controlled chaos of the kitchen

How he’s adapted his cooking approach: Slower-paced with more planning involved

What he looks forward to: Pursuing a nutrition degree to help others lead healthier lives

Diagnosis and family support

The first CIDP symptoms Mike noticed were leg pain and difficulty walking, which progressed over time. “That’s when I realized I had to do something,” he shared.

After two visits to the emergency room and undergoing various tests, Mike was later referred to a neurologist, who performed an EMG (electromyography), followed by a spinal tap. Based on these test results, Mike was diagnosed with CIDP—6 months after first looking for answers.

Although relieved to have a diagnosis, Mike recalled, “Then the reality set in that I will deal with this for the rest of my life.” However, Mike realized accepting that CIDP is a chronic condition wasn’t the biggest challenge, it was acclimating to a slower-paced lifestyle. He explained, “I’ve had to learn to be patient with myself.”

Throughout this challenging time, Mike's family provided unwavering support. He moved in with his brother, and his sister adopted his dog to help him adjust. “My family has been my biggest motivation to keep moving forward,” Mike said.

A fresh start in nutrition

Though Mike has always loved working with food, he became interested specifically in nutrition when he was at the hospital seeking a diagnosis—and a doctor recommended he try a healthy diet. Though proper nutrition alone couldn’t address his condition, it helped Mike realize that a healthy lifestyle could complement his CIDP treatment plan. “CIDP is out of my control, but I can control what I eat to feel better and optimize my body,” he said.

Today, Mike focuses on eating plenty of hearty salads, fruits, and vegetables while being mindful of his calorie intake. Along with a healthier diet, he began going to the gym, where he’s found a supportive social circle that keeps him motivated to exercise while living with CIDP. “I’ve gotten to know a lot of good friends at the gym—they hold me accountable,” Mike said. “It’s almost unspoken; you want to go every day to be a part of the group.”

CIDP is out of my control, but I can control what I eat to feel better and optimize my body.

-Mike, living with CIDP

To further his nutrition knowledge, Mike is pursuing a bachelor’s in nutrition at a state university in Illinois through online and in-person classes. Interested in the connection between the gut microbiome and neurology, Mike’s ultimate goal is to help others lead healthier lifestyles—perhaps through rehabilitation counseling, where he could use his nutrition expertise to help people who are newly disabled.

Mike flipping through a nutrition book.

On campus, Mike has discovered volunteer opportunities in the nutrition world by joining the Student Dietetic Association, which participates in outreach programs. With the organization, he has taught children's nutrition classes to help combat childhood obesity. This work is helping him determine the best path for his future in nutrition.

The thoughts and opinions expressed in this article are unique to the participant’s experience and should not be taken as medical advice. Please talk with your doctor before changing any current routines or making any dietary changes.

Rethinking the recipe for your passion

For Mike, redirecting his career toward nutrition has opened a new door of opportunity. He hopes his story inspires others living with CIDP to find new ways to pursue what they love.

Mike offered valuable insight to CIDP community members who are interested in adapting their passions: recognize your limitations, then go from there. Initially, he hoped he could return to working in a kitchen, but he realized he had to forge a new path that was suitable for his condition. “Take that first step in a new direction,” Mike encouraged. “Your interests may have to change, but that doesn’t mean they have to stop entirely.”

For more inspiration on recreating your passion while living with CIDP, discover Scott’s CIDP story.

 

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